Friday, September 26, 2008

PEOPLE LIKE US COUNCIL LAUNCHED BY EDWINA HART


The People Like Council was launched on Tuesday 23 of september 2008 by the Health Minister Edwina Hart AM with Allison John the Chair and Roy J Thomas of KW.

Allison outlined the success of the PLUS Campaign which led to the Council and outlined the success with a new dedicated transplant unit announced; more diaysis stations being planned across Wales;a successful organ donation campaign Tell a Loved One ongoing; and consultation into presumed consent for Wales.

The Minister Edwina Hart praised patients in setting up the Council.

Present was the Chief Medical officer Tony Jewell and Deputy Mike Harmer.

Tuesday, September 23, 2008

WESTERN MAIL SATURDAY 20th of SEPTEMBER 2008 VIEWS FROM THE EDITOR ON PRESUMED CONSENT

EDITORIAL WESTERN MAIL VIEWS OF THE NEWSPAPER AND PEOPLE LIKE US COUNCIL

THE question of whether we should opt out of donating our organs should we die remains a divisive one, as the political developments we report today demonstrate. The Assembly’s health committee rejected the idea, preferring to stick with the current system where people have to opt in and sign up for a donor card.
The committee decided switching the rules around would be a “distraction” from efforts to encourage more people to sign up.

Its report also suggested that public opinion was not ready to make the switch – something that seems unlikely.

Yet not every AM on the committee was convinced by this line of argument, and it seems Health Minister Edwina Hart is open to the idea of a change in policy. She said yesterday she would not rule out asking for the powers to be transferred from London to Cardiff Bay so Wales could make its own decisions on the issue.

Her response to the health committee sensibly pointed out the report did not reflect the range of different views on the question. In short, the health committee ducked the issue; it would be better to be bold, and take a position that says Wales should lead the way.

The devolution settlement allows Ministers to ask Westminster for extra powers; it should do so in this case, and a decision on whether Wales should be the first part of the UK to have a system of presumed consent in organ donations should be made by the Assembly. That decision should come in a free vote of all 60 AMs, and not be decided by a Minister or a health committee that is itself split on the issue.
We think presumed consent is a simple and sensible move forward. It’s clear that the present system does not work well enough; not enough people carry donor cards, and the waiting lists for transplants goes up and up.

Changing the policy costs nothing, save for a necessary public information campaign, and has the potential to make a huge difference to thousands of families.
Far too many people are suffering the distress of seeing loved ones fighting for life while a desperate search for donors goes on – surely we can rewrite the rules and reduce their pain? There are now 501 people waiting for a transplant, the highest ever number. With the figures heading in the wrong direction, the time is right for radical action.

Some will object that the state has no place in automatically claiming rights over a person’s body. But this would be presumed consent, not compulsory donation. Those who feel strongly can easily opt out, and some doubtless will.
But that isn’t an argument for doing nothing. The present system doesn’t work well enough, and causes unnecessary suffering. The Assembly Government should seek the power to do something about it – and show it’s brave enough to lead the way.

Monday, September 22, 2008

Kidney transplant father backs reform - WalesOnline

Kidney transplant father backs reform - WalesOnline

Mr Schofield travelled to the Philippines in June 2007 in the hope of buying a new kidney after an earlier transplant had failed.

The trip was unsuccessful but he underwent a kidney transplant at the University Hospital of Wales in February, allowing him to return to work and resume surfing.

The father-of-two said: “Presumed consent is a great thing, but the way it has been put across means many people think they will be giving everything away.

“No-one will be asking anyone to do anything different if we move to an opt-out system – people will still be able to live their lives as fast as they want, but if anything happens they will have another chance to help someone else."

Sunday, September 21, 2008

TEENAGER Robert Edwards is living proof of the amazing gift of organ donation. - WalesOnline

TEENAGER Robert Edwards is living proof of the amazing gift of organ donation. - WalesOnline


TEENAGER Robert Edwards is living proof of the amazing gift of organ donation.
Sep 20 2008 by Katie Bodinger, South Wales Echo

The 13-year-old, who was on dialysis 10 hours a night before the operation two weeks ago, is now full of energy.

After a wait of more than two years, his parents, Paul and Jayne, are understandably overjoyed that their son can look forward to being a normal youngster.

Before, their lives were on hold as they anxiously waited for the life-saving call to come.

There is a desperate need for more organ donors, as Robert’s plight shows.

Let’s hope his case will inspire more to tell relatives that if the worst happens they would want their organs to save the lives of others.

Lib Dem’s welcome for donor report - WalesOnline

Lib Dem’s welcome for donor report - WalesOnlineLib Dem’s welcome for donor report
Sep 20 2008 by Katie Norman, South Wales Echo

LIBERAL Democrat health spokeswoman Jenny Randerson has given the “strongest possible welcome” to Health Minister Edwina Hart’s rejection of the Health Committee’s report on presumed consent for organ donation.

Saturday, September 20, 2008

Wales could lead UK in presumed consent for organ donations - WalesOnline

Wales could lead UK in presumed consent for organ donations - WalesOnline

WALES could yet become the first country in the UK to change organ donation laws and introduce a controversial opt-out system.

Health Minister Edwina Hart yesterday said she would not rule out a legislative competence order for presumed consent, as she rejected recommendations by the National Assembly’s influential health committee.

Friday, September 19, 2008

Wales organ donation consent plan - WalesOnline

Wales organ donation consent plan - WalesOnline

Wales organ donation consent plan
Sep 19 2008 By Madeleine Brindley

WALES could become the first part of the UK to switch to a system of presumed consent for organ donation as Health Minister Edwina Hart today dramatically rejected an Assembly committee report.

The National Assembly's health committee decided that it would not call for such an opt-out system earlier this year because it would "distract" from the need to increase the number of organs available for donation.

But Mrs Hart today said that the receommendation is out of step with public opinion and said the Assembly Government will not rule out seeking a legislative competence order to introduce presumed consent in Wales.

BBC NEWS | Wales | Presumed consent on organs backed

BBC NEWS | Wales | Presumed consent on organs backed

A system of "presumed consent" for organ donations may be sought by the Welsh Assembly Government.

Health Minister Edwina Hart has announced that it remains under "active consideration".

She was responding to the assembly health committee's recommendation that ministers should not seek powers to bring in such a system.